It has been a week since we have started intermittent catheterizing and it seems to be working well, Lexi has been getting along with it and takes it in her stride. She is also on medication daily but it is good to know that we are getting somewhere and that things are being done.
I have swapped the children's rooms around as Lexi needed a bit more room and so I'm currently looking for great ideas for their rooms, Logan doesn't mind so much being in a smaller room i think he is quite looking forward to having a mid sleeper bed.
We have a lot more scans and investigations with regard to the bladder problems and we are hoping that most things are solved by what we are doing including minimising the number of infections she gets.
The new things that she needed such as her 5th pushchair and another car seat seem to be working out fine, next is a toddler bed!
People obviously ask me how I'm managing, and the truth is its hard, but I'm trying to remain positive and even though she will have to learn to catheterise herself when she gets older i just keep thinking that its not the worse that could happen.
It has made things a lot harder with regards to care as you have to be properly trained to do it and so things like nursery and her starting school seem very daunting, and only myself and my husband are trained at the moment so going out takes a lot of planning.
She has her DMSA scan again soon to see if her kidneys are damaged. One step at a time and we will get over each hill.
